31 for 21: Skating!

Thursday, October 18, 2012, we went skating at the Muskogee Skating rink with friends and family. Skating is another event O really looks forward to going to. We all had a blast skating 

and then we went out to eat at Golden Corral!

Here are some pictures -

O skating!

Oldest sister doing limbo.

My oldest sister being a weirdo!

31 for 21: Top 100 Special Needs Resources on the Web

Here is a post I "stole" from my mom:

    Pretty neat. Our Down syndrome blog made it into the top 100 List of Special Education sites. In the Down syndrome category it says this:

                 "Down (or Down’s) Syndrome, also known by the name trisomy 21, occurs when an extra copy of chromosome 21 is present in a person’s genome. Down syndrome is diagnosed at birth, and can be tested for very early in pregnancy. Those with the condition usually have low IQs and unusually broad, flat, and round faces, as well as large tongues, which may cause their speech to be impeded. Since trisomy 21 is the most common known chromosomal disorder, special education programs are often well equipped to serve people with Down Syndrome. Additionally, a strong support community of bloggers and others willing to share their stories about Down’s Syndrome has evolved. The sites below are some of the best sources for info on parenting, education, and other aspects of raising a child with Down’s."

 If you click on the button below, you will be taken to the Top 100 Special Needs Resources on the Web. You can scroll down to see our site at number 20 overall and number 2 in the Down syndrome section.

I must give a special thanks to my oldest daughter, Qadoshyah Fish. Without her efforts, our knowledge about Down syndrome and all that can be done for our little guy would be way different, I think.

Please feel free to contact us if you need help in understanding the health and nutritional side of things in relation to Down syndrome. You can email me here - Kim Fish


http://okieranchlife.blogspot.com/

 

Grab This Button

31 for 21: Articles

Here is more that my sister, Qadoshyah, has done -

Below is an organized list of articles that we have on our website and some that were written on our blog. Be sure to also continually check the blog as well, because there may be more articles on there that haven't been linked here yet!

There are a lot more articles I plan on adding soon (many of which are already written on our blog), so keep checking back :).

~The First Step:

The Joy of Raising A Child With Down Syndrome

Giving Birth to a baby with DS

Breastfeeding a baby with DS

Response to "A Wrongful Birth?"

Looking Back Through The Past Two Years

An Open Letter To A Hospital

~Medical Stuff:

Deficiencies Caused by Reflux Medications

~Targeted Nutritional Intervention:

Rebuttal to Dr. Leshin's article against TNI

TNI FAQ

What is TNI?

The Vitamins We Give

~~Changing Minds Foundation Protocol:

~~Ginkgo Biloba:

~~Longvida Curcumin: (this section coming soon, Lord willing)

What is Longvida Curcumin?

Frequently Asked Questions about Longvida

~~Other Vitamins:

Idebenone

Glutathione & Acetaminophen (Tylenol)

Speech Therapy:

Spoon Feeding to Discourage Tongue Thrust

PROMPT: The "Ah" or "Uh" Command

PROMPT: The "B" Command

PROMPT: The "E" Command

PROMPT: The "G" or "K" Command

PROMPT: The "L" Command

PROMPT: The "M" Command

PROMPT: The "P" Command

PROMPT: The "T" Command

A Cue for the "S" Sound

Vaccines:

Vaccines and the Immune System

Flu Vaccine

Links to Vaccine Info

http://www.gotdownsyndrome.net/articles.html

 

Grab This Button

31 for 21: 4 more FAQs

Q: Do people with Down Syndrome learn to talk?

A: Absolutely!! They can learn to talk, just like anyone else. They may have some difficulties, particularly because of their muscles in their mouth, but there are therapists who help with these issues. Sign Language and Cued Speech can also be helpful in this area.

Q: Do people with Down Syndrome learn to read?

A: Yes, they can learn to read just like anyone else. Again, they may have some problems with learning to read, but there is no reason they cannot. Sign Language and Cued Speech may also help with this.

Q: Can people with Down Syndrome live a normal€ life?

A: Yes, they absolutely can. There are quite a few who are. 
For a few examples of that please see the links below:

- Erik Behnke

- Chris Burke

- Jane Cameron

- Sujeet Desai

- Karen Gaffney

- Raymond Hu

- Michael Johnson

- Rachel Roberts

- Ashley Wolfe

- Carrie Bergeron

Q: Can Down Syndrome people get married?

A: Yes, they can. There are a few recent couples that have taken the step of matrimony.
See the links below:

- Sujeet Desai & Carrie Bergeron

- Proposal ; Wedding Plans - Article 1 & Article 2 , Another link on Sujeet & Carrie , Wedding Photos

- Josh Putnam & Bernadette Resha - Couple with Down syndrome Prepare to Wed

- A Down Syndrome couple marry, from a mexican newspaper

- Down's Syndrome couple celebrates their 2nd anniversary

- Special Wedding For A Special Couple

- Jim Lindquis & Sarah Stanchfield - May I Have This Dance?

- Eric Neatrour & Christine Kurvits - Couple with Down syndrome win contest, exchange vows

http://www.gotdownsyndrome.net/faq.html

Grab This Button

31 for 21: 3 FAQs

Q: I gave birth to a child with Down Syndrome, now what do I do?

A: Congratulations is the first thing to say!!! You have just been BLESSED with a wonderful Down Syndrome child. The very first thing to do is to love that child as much as you can. I would also highly suggest to research out all that you can about Down Syndrome. Some big things to look at are: Targeted Nutritional Intervention, Teaching Reading & Speaking to a child with Down Syndrome, Oral Motor Therapy.

Q: What are the first thing(s) you would recommend for someone who is new to Down Syndrome?

A: Targeted Nutritional Intervention would be the first thing. Secondly, we would recommend Oral Motor Therapy, not just Speech Therapy. See our articles section and links page for some more info on both of these.

Q: Are all people with Down Syndrome "retarded"?

A: In a way yes, but in a way no. In Down Syndrome, they have a progressive mental retardation. Brain cells start to die off earlier than individuals without DS. Individuals with DS also have more oxidative stress problems than individuals without. Thus, this is the reason for Targeted Nutritional Intervention (TNI) - to help slow down and prevent some of the cell death, oxidative stress/damage and retardation.

http://www.gotdownsyndrome.net/faq.html

 

Grab This Button

31 for 21: 4 FAQs

Q: What does DS€ stand for?

A: Abbreviation for Down Syndrome.

Q: What does TNI€ stand for?

A: Abbreviation for Targeted Nutritional Intervention.

Q: What is Targeted Nutritional Intervention?

A: Please see our article, What Is Targeted Nutritional Intervention all about?

Q: I am expecting a child with Down Syndrome, what should I do?

A: First, start finding out all that you can about Down Syndrome and be ready to love that baby when it is born. You can see a lot of links with information on them on our Links page. You can also see a list of our recommended books on our Books page. We would also encourage you to look into Nutrivene-D and order the vitamins now, before your child is born, that way, when he is born, you can start giving it to him as early as possible!!

http://www.gotdownsyndrome.net/faq.html

 

Grab This Button

31 for 21: Are there degrees of Down Syndrome and are there different types of Down Syndrome?

Q: Are there degrees of Down Syndrome?

A: No, there are not degrees to Down Syndrome. However some individuals with Down Syndrome may not seem as mentally retarded as others. Why would this be? This could be dependent upon the person's upbringing and what foods or vits they have had or not had. The individual may not be deficient in some things that DS people generally are deficient in. They may also be using TNI, or eating a diet high in anti-oxidants and foods that will help protect them from so much oxidative stress and the like.

Q: Are there different types of Down Syndrome?

A: There are 3 different types of Down Syndrome, they are - Full Trisomy 21, Mosaic DS and Translocation DS. Full Trisomy 21 is where all the cells have a third 21st chromosome in them. Mosaic DS is where there are two cell lines. Meaning, there are some cells that have the normal 46 chromosomes and there are some cells that have an extra 21st chromosome to them, making 47 chromosomes. Thus, that is where the mosaic pattern comes from. Translocation DS is where part or all of the third 21st chromosome is Translocated to another chromosome, usually chromosome 14. This only occurs in about 3-5% of the DS population.

http://www.gotdownsyndrome.net/faq.html

 

Grab This Button